Things not to say to someone with a Chronic Illness

I found this image the other day and thought it was absolutely perfect. Having a chronic illness means you get these statements all the time.

When I returned to work after my flare up, I had 18 of these. From you sleep to much, You don’t look sick and you’re just stressed.

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How many can you tick off? Every time someone says one of these too you just remember they obviously don’t know what you go through every day. We are strong people, even when we are in pain we continue on with a smile on our faces. Other’s go home with a little headache, we go home when we can no longer stand.

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There’s nothing we can do for you

7 words which stay with you… There’s nothing we can do for you!
I heard this several times from my GP last year, It’s so disheartening and makes you feel like you are crazy. Are you just imagining something is wrong with you? No you’re not. You know you body and you know what isn’t right for you. If you feel unwell, you know there is something wrong with you, be persistent with them.

I went for my first doctors appointment after having pains for 3 weeks, I was feeling sick all the time and I couldn’t stomach anything. After eating I was feeling like I was going to be sick or that the room was spinning. Every single day, sometimes the nausea didn’t go away. I had been doing temporary work for roughly 2 months when I started to feel really run down, sick and tired. Not a great impression when you had a review meeting coming up and a possible offer of the job full time.
The first doctors appointment I had ended with me feeling annoyed and like I was going crazy. The doctor checked me over and said that it could just be a viral infection, She told me to take some ibuprofen (allergic to paracetamol), get some rest and drink plenty of fluids. I didn’t feel like this was a viral infection but I wasn’t sure what it was at that point so I took the advice. The doctor said there’s nothing else they can do for me until I wait out this infection, if it doesn’t go away we will have another look.

After 2 more weeks I wasn’t any better, if anything I was getting worse. On bad days I wasn’t able to eat anything other than ginger nut biscuits. Hint: Ginger is a life saver when all you feel like doing is throwing up.
I booked another appointment for 4 weeks later. In the 4 weeks I did a food diary and I wrote down every symptom I was having. When this appointment came round, I went into the doctors hoping they would have a better answer for me. Boy was I wrong! The doctor went back through my notes and asked how I got on taking the ibuprofen, I told her I was still having stomach cramps and that I wasn’t eating very much as the smell of food was making me feel sick.
Once I said this it was like a light bulb had just turned on in her head, She asked me if I could be pregnant. If she had read my notes thoroughly she would have seen that I’m on the contraceptive pill and I had only just collecting another prescription the week before. I told her I had just had a completely normal cycle, she didn’t believe me. I did a pregnancy test while I was there and it came back negative, No surprises there.

She said she would put me in for a blood test to see how my anaemia’s were doing maybe I was low on iron or B12. I have both types of anaemia; Pernicious and Iron. My blood test was another 2 weeks and then an appointment 2 weeks later to discuss the results.

2 weeks after my blood test I was sat back in the doctors, with a list of 20+ symptoms. I was determined to find out what was wrong with me. The results showed that my iron and vitamin B12 levels are perfectly fine, but all my vitamins are on borderline. My vitamin D being the most worrying. The doctor prescribed some high dosage vitamin D tablets to take twice a day for 2 weeks to boost it back up to a normal level. She advise after 2 weeks to book a blood test appointment and take vitamin D tablets that I can buy over the counter and take 1 a day. She told me that my symptoms should start to go away once the supplements started to work.

6 months since my first appointment, It was between Christmas and New year and I rung my GP practice to see if my results are in. The receptionist told me everything is fine and to have a Happy New Year. I ask her if she can get a doctor to ring me to confirm this information as she is not professional trained to tell me that. Do not accept results from anyone that isn’t trained. They don’t know what’s normal and cannot offer you medical advice.

Later that day the GP called me back; none of the vitamin D tablets made any difference. She said clearly something is wrong as i’m not absorbing any vitamins. I’m not gaining any weight because i’m not taking anything from my food. I asked what the next step is and she said i’m going to have to have more blood tests. Maybe I’m gluten or dairy intolerant. But until I had a blood test and the results were back, again there’s nothing they could do for me.

 

 

First blog post

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Hi everyone, So this is my first blog on this topic, It’s not an easy thing to talk about and I will be admitting a lot of stuff that I hate to admit and talk about.
Being young and in pain constantly is difficult at any age but you just have to take one day at a time.

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Youngandinpain is about dealing with chronic pain everyday. I’m 22 years old and for over a year now I have suffered from chronic stomach pain and trouble eating the food I usually love. While going through this for a year and a bit, I have done a lot of research on Inflammatory Bowel Disease (IBD) which includes Ulcerative Colitis and Crohn’s disease. During this research I realised that there’s no support for anyone under the age of 30. I know there are people who suffer from Crohns and Ulcerative Colitis that are younger than me and older than me and I’m hoping my blog can help answer some questions for people around my age that suffer from these conditions. At the moment I haven’t be diagnosed for definite with Ulcerative Colitis but it’s the most likely cause at the moment.

That’s enough for my first blog, my next one will be about all my doctors appointments and finally being referred to the Gastroenterology department

Thanks for reading 🙂